Well-Being Education for Heart Defects

(PHN WBC Trial)

This trial aims to help teens with congenital heart disease (CHD) build resilience and improve their quality of life by testing the WE BEAT Well-Being Education Program, a 5-week online group course. Researchers seek to determine if participants in the program manage stress better than those receiving usual care. Participants will be divided into two groups: one will try the WE BEAT program, and the other will continue with their current care routine. Teens aged 12-17 with moderate to severe CHD who speak English or Spanish are encouraged to join. Participants will complete surveys and provide hair or saliva samples over approximately six months. As an unphased trial, this study offers a unique opportunity to contribute to research that could enhance the well-being of teens with CHD.

The trial information does not specify whether you need to stop taking your current medications. It seems focused on a wellbeing program rather than medication changes, so you likely won't need to stop your meds, but it's best to confirm with the trial coordinators.

Research has shown that the WE BEAT Well-Being Education Program is safe and manageable for teenagers with congenital heart disease (CHD). An initial study reported no serious side effects or problems linked to the program. Most participants found it helpful and easy to follow.

The program builds resilience and coping skills over five weeks through online group sessions. Since it relies on education and doesn't involve medication or medical procedures, the risks remain very low. It uses proven methods and is safe for young people aged 12 to 17.

Researchers are excited about the WE BEAT Well-Being Education Program because it offers a unique telemedicine approach for individuals with heart defects, focusing on improving mental and emotional health alongside physical care. Unlike the standard of care, which typically involves regular medical monitoring and physical interventions, this program provides structured support and education remotely, making it more accessible and convenient for patients. By integrating well-being education into the treatment plan, it aims to enhance overall quality of life, which is a fresh angle compared to traditional treatments.

Studies have shown that the WE BEAT Well-Being Education Program can effectively help teens with congenital heart disease (CHD) become more resilient. A pilot study found that participants in this 5-week online program developed better coping skills and improved their ability to recover from difficult situations. In this trial, some participants will receive the WE BEAT telemedicine intervention, which teaches resilience and stress management, crucial for enhancing the quality of life in teens with CHD. Although more research is needed to fully confirm its benefits, early results are promising for boosting mental and emotional well-being in this group.¹²³⁴⁶