PEERS Program for Epilepsy

This trial aims to understand why some people with epilepsy do not receive the surgery they need and to test educational materials that could help. Participants will either receive their usual care or their usual care plus materials from the PEERS Program, which explains how social factors can affect surgery decisions and outcomes. Individuals evaluated for epilepsy surgery at the Cleveland Clinic who can speak English might be a good fit for this trial.

As an unphased trial, this study offers participants the opportunity to contribute to important research that could enhance educational resources and decision-making for epilepsy surgery.

The trial information does not specify whether you need to stop taking your current medications. It seems likely that you can continue your usual care, but please confirm with the trial coordinators.

Research shows that epilepsy education programs are safe and helpful. Studies have found that these programs increase knowledge and improve attitudes about epilepsy without causing harm. For instance, one study reported that a peer education program raised knowledge scores from about 8 to 12.5 on their scale and slightly improved attitudes. Another review highlighted that these programs make people more aware and informed about epilepsy.

Researchers are excited about the PEERS Program for epilepsy because it aims to tackle access barriers to epilepsy surgery, which is an often underutilized but potentially life-changing treatment for patients with drug-resistant epilepsy. Unlike standard treatments that focus primarily on medication or surgical procedures, this program explores the social determinants of health and their impact on accessing necessary medical care. By using surveys, focus groups, and educational videos, the program seeks to identify and address the obstacles that prevent patients from receiving timely and effective surgical interventions. This approach could lead to improved access to care and better overall outcomes for epilepsy patients.

Research has shown that educational programs about epilepsy can significantly enhance understanding and attitudes toward the condition. One study found that participation in a peer education program increased the number of students who felt prepared to assist during a seizure emergency from about 20% to over 54%. This finding demonstrates that education can equip individuals with the necessary skills and confidence. Another review highlighted that these programs can boost knowledge about epilepsy and improve quality of life. In this trial, the PEERS Program aims to further enhance these positive outcomes by addressing social factors that influence health. Participants in the intervention arm will watch an educational video on social determinants of health and their impact on medical care, while those in the control arm will receive standard care.⁴⁵⁶⁷⁸