Active Caregiving for Dementia

This trial aims to determine if a new approach called ACES (Active Caregiving: Enhancing Skills) can boost confidence and alter the thoughts and actions of Black immigrant caregivers of people with dementia. The study will assess whether this intervention, based on Cognitive Behavioral Therapy (a type of talk therapy), improves caregivers' mental outlook and skills. Participants will be divided into two groups: one will receive the ACES program through online sessions, while the other will join later. The trial seeks Black immigrant caregivers who have assisted someone with dementia for at least six months and can communicate in English. As an unphased trial, this study offers a unique opportunity to contribute to research that could enhance caregiving skills and confidence.

The trial information does not specify whether you need to stop taking your current medications. It's best to discuss this with the trial coordinators or your doctor.

Research has shown that the Active Caregiving: Enhancing Skills program is generally safe for participants. Studies have found that this training can boost caregivers' knowledge and confidence. Importantly, these studies did not identify any major negative effects or safety issues for participants, indicating the program is well-tolerated. Additionally, similar programs have successfully reduced stress and improved caregiving experiences without causing harm. Overall, the evidence supports that this type of caregiving support is safe for those involved.¹²³⁴⁵

Researchers are excited about the "Active Caregiving: Enhancing Skills" intervention because it offers a fresh approach to supporting dementia caregivers. Unlike traditional methods that might focus solely on educational support or respite care, this intervention is rooted in Cognitive Behavioral Therapy (CBT), emphasizing cognitive appraisal and behavioral activation. This approach helps caregivers reshape their mindset and develop practical skills to better handle the challenges of caregiving. Additionally, the program is tailored in collaboration with Black immigrant dementia care partners, ensuring cultural relevance and inclusivity. This unique combination of therapy-based skills training and cultural adaptation makes it a promising option for improving caregiver well-being.

Research has shown that involving caregivers in skill-building programs like Active Caregiving: Enhancing Skills can boost their confidence and lower stress. In this trial, participants in the Adapted ACES intervention arm will engage in a program based on cognitive behavioral therapy principles to help caregivers change their thoughts and actions. Some studies indicate that these programs help caregivers feel more prepared and find positive aspects in their role. Training has increased caregivers' knowledge about dementia and their confidence in their abilities, although it hasn't always reduced stress. Overall, evidence suggests these skills can lead to better caregiving outcomes.¹³⁴⁶⁷